By Robert F. Weir (auth.), Arthur L. Caplan, Robert H. Blank, Janna C. Merrick (eds.)
In April 1982, an baby boy was once born in Bloomington, Indiana, with Down syndrome and a faulty, yet surgically correctable, esophagus. His mom and dad refused to consent to surgical procedure or intravenous feeding. The health facility unsuccessfully sought a courtroom order to strength therapy, and appeals to raised courts additionally failed. the kid, pointed out as child Doe by means of the inside track media, for that reason died. The occasions in Bloomington turned the catalyst for motion by means of the Reagan management, the courts, and Congress that culminated in a federal coverage that makes failure to regard newborns with disabilities a sort of kid forget. This booklet facilities at the public coverage facets of withholding remedy from severely sick newborns who're disabled. particularly, it bargains with why the coverage was once enacted and what effect it has had on overall healthiness care employees, households, and babies. a few of the members to this ebook spearheaded the early debate on withholding therapy. Anthony Shaw's manhattan instances journal article in 1972 used to be the 1st to handle those concerns within the renowned press. the subsequent 12 months, he released a comparable article within the New England magazine of drugs. additionally showing during this similar factor of NEJM, was once the pathbreaking examine, coauthored via A. G. M. Campbell, on withholding remedy within the certain care nursery at Yale-New Haven medical institution. each one of those articles promoted a lot public discussion.
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Additional info for Compelled Compassion: Government Intervention in the Treatment of Critically Ill Newborns
Aired on Cable News Network in February 1984. It focused on the selection criteria reported by Gross in Oklahoma. The "camera captured the picture of Carlton Johnson, a black baby born with spina bifida to an unmarried mother receiving welfare" (Civil Rights, 1989). " 3 [Feb. 21,22, and 24, 1984], cited in Civil Rights, 1989). Some alleged that this type of selection process constituted racial and socioeconomic discrimination. Disability rights organizations filed formal complaints with DHHS and the Department of Justice in February 1984, and the American Civil Liberties Union, in conjunction with the National Center for the Medically Dependent and Disabled, filed suit against the physicians in October 1985 (Civil Rights, 1989).
Accepting on even partial basis an institutional review board ... is a venal decision and for handicapped babies, a fatal one" (Washington Post, Jan. 6, 1984). Between the time that the "interim final rule" was overturned by the court and the "final rule" was promulgated, Baby Jane Doe was born and admitted to University Hospital at Stony Brook, New York. Litigation began in the New York State courts when a prolife lawyer who had worked for aNew York branch of the National Right to Life Committee filed suit in Suffolk County Supreme Court seeking to force surgery.
And Fanaroff, A A (1989) Outcomes of extremely low-birthweight infants between 1982 and 1988. N. Engl. J. Med. 321, 1642-1647. Jecker, N. S. (1990) Commentary: The moral status of patients who are not strict persons. J. Clin. Ethics 1, 35-38. , and Winslade, W. J. (1986) Clinical Ethics (Macmillan, New York), p. 188. Kaufman, S. L. and Shepard, D. (1982) Costs of neonatal intensive care by day of stay. Inquiry 19,167-178. Kopelman, L. , and Kopelman, A (1988) Neonatologists judge the ''Baby Doe" regulations.